Cohen suffers from Gracile Syndrome an incredibly rare genetic condition. He is the only child in NSW with the condition. GRACILE stands for the condition's characteristic features: growth retardation, aminoaciduria, cholestasis, iron overload, lactic acidosis, and early death.
Cohen also suffers from Mitochondrial Disease, mild liver dysfunction, renal tubular dysfunction and is gastrostomy fed. Cohen has a very small stature. He is 65cm. At 2 ½ years old, he is the size of a 3 month old.
Mates on a Mission are working with Cohen and his family to plan the holiday of their dreams and the opportunity to make wonderful memories together.
Every child deserves the chance to make precious memories with the people they love.
Mates on a Mission helps children like Cohen create moments of joy, connection and hope with their families, during the toughest journey of their lives.
For just $1 a day, you can Become a Mate and help children like Cohen experience unforgettable MOAM Moments, while also helping us build the future MOAM Retreat, so thousands more families can create lasting memories for years to come.
Today, we're on a March to 1,000 Mates - a community of everyday people committed to creating extraordinary memories for families when they need them most.
Every dollar helps create moments that matter.
Join the March to 1,000 Mates.
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