Cohen suffers from Gracile Syndrome an incredibly rare genetic condition. He is the only child in NSW with the condition. GRACILE stands for the condition's characteristic features: growth retardation, aminoaciduria, cholestasis, iron overload, lactic acidosis, and early death.
Cohen also suffers from Mitochondrial Disease, mild liver dysfunction, renal tubular dysfunction and is gastrostomy fed. Cohen has a very small stature. He is 65cm. At 2 ½ years old, he is the size of a 3 month old.
Mates on a Mission are working with Cohen and his family to plan the holiday of their dreams and the opportunity to make wonderful memories together.
MOAM would like to help Cohen achieve their dream. Click below if you would like to contribute to Cohen and their family. Alternatively, for $1 per day you can help Cohen and other children realise their dreams and also contribute to the MOAM retreat. Please donate today and Become a Mate.
Steven is a bright, intelligent and beautiful young boy, facing an illness that no child should ever have to endure..…
Terron is an adorable and inspirational young boy, battling an illness that no child should have to face.
Vir is a bright & bubbly young boy, with a beautiful spirit, who is bravely battling Acute Myeloid Leukemia (AML), an…